Parents Planning Programs (PPP)
for the Developmentally Disabled of Florida, inc.
   
  
Camphill Connection Project

EXCERPTS FROM MINUTES OF PARENT MEETING, NOV. 18, 19, 20, 1998 
PARENT WORKSHOP, PLANNING AND PROGRAM DEVELOPMENT

The meeting was opened by the facilitator with a statement of concerns regarding the need for long term care of our children. 

A presentation of two community models of five Camphill Villages and Melmark was given by Gene and Lila Klausman, which consisted of promo tapes followed by actual videotapes taken on their field study on June 23, 24, 25, 1998 when they were accompanied by two other parents. 

A parent worksheet was distributed which asked participants to respond to three exercises: 

(1)  Writing a response to complete the statement:  "If I could create the perfect community for my child, this is what I would like.  It would be a place where . . ." 
(2)  Prioritizing  values from a list of 17 items, selecting three which would be considered  most important. 
(3)  Following the viewing of videos, responding to the question:  "What do you think goes into the making of successful villages, from what you have seen of Camphill and Melmark?" 

Some of the responses which were written and then discussed among smaller groups were as follows: 

Item (1) regarding an ideal community: 

Ongoing residential care after parents' death or ability to provide care;  material, spiritual and cultural resources for leading a full life family life, friendship, work and fun; highly trained and committed personnel; loving, safe and free environment;  stimulating and variety of activities, meaningful, productive, enjoyable and enriching work programs; extended community supports; shared housing in a safe, supervised and happy environment; an opportunity for social interactions with both handicapped and non disabled population; family nearby or in same community; easy access to community—work, church, movies, grocery;  amenities like a pool, exercise room; caretakers who have been carefully screened and have ongoing education in the care of MR/DD folks; educational, medical, social and employment opportunities;  opportunity for individual to feel he/she belongs, "where he would feel important" and  "is making a contribution," "a place to go and things to do just like any other person." 

Item (2) regarding most important values (number of votes):

Security and safety (20) 
Quality of life (13) 
Love and friendship (9) 
Human dignity (7) 
Ongoing growth and development (7) 
Spiritual and cultural enrichment (4) 
Independence (4) 

Participants felt that the remaining values listed were important, but were implied: in the list of values considered above.  These were: family life, recreation, belongingness, usefulness, stability, interdependence, beautiful environment. 

Item (3) regarding impressions of what makes a successful village (Camphill and Melmark) after viewing the videos: 

 Responses generally reflected the dedicated, committed, skilled level of co-workers or staff who are motivated by a guiding philosophy of rich family living, spiritual, social and cultural values,  as well as fulfilling, meaningful and enjoyable work that enhances human dignity and enriches human potential. 

 Also noted were stability and permanence of these communities ("people who will be there to take on the needs of a family") supported by ongoing growth and flexibility-- educationally, conceptually and geographically -- with a solid financial base. 

 Other specifics mentioned were: 

  • vision, farm life-closeness to nature
  • harmonious, peaceful and esthetically beautiful environment
  • caring, interested and energetic teachers and care givers variety of work tasks
  • opportunity for residents to make a contribution by their involvement in community enterprises
  • production of quality products for world markets
Participants were asked to contribute their topics for future workshops that were of concern to them.  Some suggestions were to invite guest speakers such as Cornelius Pietzner of Camphill, as well as directors of local programs and services (transportation, Family Links, BAC, Parks Dep't., Special Olympics, group homes directors, support coordinators, funding experts, legal counsel, grant writers, etc.)  Fundraising was also mentioned as a way of implementing future projects.  A specific fundraising activity was suggested by one parent, the development of a Christmas tree farm.  Parents were urged by the facilitator to explore the programs that their children are attending and to find ways to enhance them and develop new ones.  This was considered a worthwhile topic for future workshops.  Specific committees for these projects as well as public relations/press releases were suggested.  Facilitator suggested that future agenda might also be involved in goal setting as a way of clearly seeing objectives and further defining committee work. Parents were urged by the facilitator to keep in touch with the facilitator and other parents about their ideas and concerns.  A parent directory for this purpose was proposed. 

The next workshop meeting was tentatively set for the third week of January or soon thereafter, to be called by the facilitator. 

Respectfully submitted, 

------------------------------- 
Lila Klausman, facilitator